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it was late last night and i was still thinking about these scraps.  Why?.   not at all what i might want to work on.  Uneasy.   and i went to bed.  but, lying there,  i remembered the word that Alz B. used to use a lot.  she used it for many things in her last years before going to the Old Folks Home in particular.   i was trying to remember it the other day in a conversation with her son.  i couldn't think of it.   lying in bed,  out of the blue,  i remembered.  Hideous.

and that word tripped off a series of images.  of her over the last several years, of her in the shower the other day.  and the last, almost a still shot,  is her…..Look.  her looking at me,  suddenly, three times  as we sat in the SunRoom of the Old Folks Home the last time i was there.  As usual, she appeared to be sleeping.  eyes closed.  slumped and curled in her big reclining wheelchair kind of affair.  the TV was on.  it was Gunsmoke reruns and i was sitting on the couch holding her hand, absently running my index finger along the palm.  now and then,  i'd say something.  try to engage her.  but then go back to watching the TV.  during that time, a half hour,  out of nowhere,  her eyes opened and she "shot me a look"….direct and Hard.  each time i responded with her name, with a comment…but there was nothing but that split second LOOK and she would close her eyes.  Close her Self.  

 

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i stitched it this morning.  with red thread.  red thread for the blood that continues coursing through her veins.  her heart is strong.  the "heart" that is a biological organ.  it is strong.  

 

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but this is Her.  like what she is now.  i have no idea,  her sense of herSelf.  none.  she has no speech to tell me.   just random words that don't connect one to another…mutterings.  and then her singing,  which is for some reason the most of all intact.  

 

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and i pinned this drawing to the back of the cloth.  so i would remember what it was i was feeling as i was trying to understand a way of Seeing that was Unfamiliar to me

 

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so, this might be enough.  the Sky and Sun might just stay pinned.  She never cared.  even in her better days she didn't really care.   We were an odd pair.  Together because her son wanted us to be.  but i don't think we ever would have chosen each other otherwise.  there were differences.

She at one time,  not long after moving here from her home because he wanted her to,  after moving here,  she took training to be the Ombudsman at this same Old Folks Home.  and ombudsman is the ally of the resident.  helping the resident express and hold their own wishes in the circumstance of their physical ability and living in an end life or extended care facility.  but she never followed through because she found the residents there….Hideous.  i asked her…Why?  Why Hideous?

and she said they are Ugly.

i think this Cloth was for no purpose at all except to help me understand how it might be for her in this time.  how she somehow is IN there….in this body,  in this skull,  looking out still.  but she is not connecting at all with what is Seen.  there is a total disconnect,  maybe.  there is her Consciousness and then Everything else, "out there".  She is trapped in a way.  the blood flows strong.  who knows how long.  but there is that disconnect.    The Cloth helps me understand.  it's not pretty.

 

 

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38 responses to “Listening”

  1. beth Avatar

    No it’s not pretty is it. For the eyes to see out there must be a brain to process. I’ve often thought how awful it would be to be unable to see. But to be unable to be aware, to be unable to process… But then again if you were unaware would you care?

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  2. judykeathley@cox.net Avatar
    judykeathley@cox.net

    who knows what is going on inside her
    do you ever bring a cloth for her to hold?
    this relationship –however unchosen it may seem –is what it is —
    & it seems to be a significant relationship for you both–
    then & now
    who knows what it’s all about
    then & now

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  3. grace Avatar

    that’s the thing. what does UNAWARE mean. she appears
    to be UNABLE to process. but she continues to. i think
    she continues to. in HER WAY. and that way very might
    be Hell for her. to look OUT and see things as Hideous,
    as hated.
    i’m really trying not to give this more than it IS, but
    to me…it’s about what we Hate. What we see as Hideous.
    That Question is constant, between me and her son. IS? she
    aware? and how does she experience her Awareness? No one
    will be able to have an answer to any of it unless it comes
    to them of its own accord from trying. and who is to say
    if it’s REAL?
    but what i do Receive from all this…is….if there is
    any kind of
    hatred
    at all
    in
    me
    i need to stand and face it. i need to LOOK and LISTEN
    clearly. because if i don’t, it’s what i will live within in those final days. and no. it’s not pretty.

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  4. grace Avatar

    i haven’t brought a cloth, no. in the past, before she was at this point, she would look at my Cloth work and say
    Why is it so dirty?
    anything that was worn, frayed, not New was dirty, ugly.
    and as you say, the relationship, tho unchosen as it may seem…is
    what it is. and is for the Long Haul, too. Till Death do us part.
    who knows, what it’s all about.

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  5. Michelle in NYC Avatar

    I’m deep in thought…no, feeling. I will try to write about it when I can.

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  6. Carole Avatar
    Carole

    Hi Grace, I love this cloth,the top is US (everyone) and the long piece is the road to where we all go, in our different ways ..
    love opening up your page now… (always have)but no number now :)…its mmm what wil the heading be today ???
    enjoy your days ‘off’
    Carole xo

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  7. Dana Avatar

    This is essential stuff, Grace. The opacity of Alice’s awareness must isolate her terribly, but I think you should trust the intuitions your cloth is showing you. You may not have chosen Alice, but you seem to have insight into her situation and that might be the only thread she has to outer life. Her strong blood pulses through your cloth. It isn’t pretty, but it isn’t hideous either…it just IS.

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  8. jude Avatar

    ah grace, i sent this one to wendy (especially for you,the 4th picture down)…so much thinking about from the inside out again these days.
    http://spiritcloth.typepad.com/spirit_cloth/2009/08/maintaining-transparency.html

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  9. patricia Avatar

    the book you mentioned once–Andrew Holecek’s “Preparing to Die” discusses the bardo and the need to prepare for experiencing it. i’m wondering if that’s what she is doing? and as i understand it, our particular bardos reflect how we lived.

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  10. margaret johnson Avatar
    margaret johnson

    Grace, your cloth and words are very thought provoking, WHO knows what is going on in someone else’s head. Sometimes it’s hard to know what is going on in your own head. The lower section of the cloth gave me a jolt, because it is similar to a collage I did when I was in therapy. The image I made terrified me for a long time. I was trying to portray how I FELT, looking out. Blank, empty. I hope when Alz B sings she experiences some joy. ox

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  11. Marti Avatar
    Marti

    Disconnect, what must that be like…
    I look at that long piece of trailing dark, how it goes from the lightness at the top of the cloth, (sky) and trails down to the dark reality of Betty’s life…that trailing piece, a bridge to the only place where connection exists, her singing;the subconscious holding onto the music, maybe it is the only bit of reality for her. And the bottom piece, loosely woven, light in color, ripped, that fragile piece, that fragile hold of the music coming from someplace so deep within her…
    I’m going way too literal here but this cloth or maybe your words about how this helps you to understand, are important:
    Light/dark, you,present, to take onto yourself what you are witnessing. In return, your sharing this experiences with her, your words opening a dialog within each of us as we look at the whole of life. You are more than a storyteller grace, you are a life marker, a signpost that leads us into directions that matter…

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  12. yvette Avatar

    swallow ( difficult drinking?) these words
    i feel a cloth around me heavely wind, arms inside
    not possible to move
    i hate hate hate hate
    my body is the awareness
    cold hot trapped hunger
    thats it
    thats the consciousness …seeking first needs..in the beginning as well as in the end
    oh Grace

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  13. KAMFreeman Avatar

    Away for a week or more I returned this morning to read a most wonderful post; your presence, your words may register deep within her older/aging body. And the cloth so expresses the words written here. I read and looked and read and looked and it all registered with me like a picture book might to a child with that other side of life silence as new comes in and expresses and voice is found. As one to whom music playing and singing has been central throughout my 70 years I hope that to my end days I will sing the words, as I find myself doing today, words to songs I learned back in time. Her voice in song surely connects to her very core…one place alive and presented, as I see it, as a gift to you, faithful attendant to her in companionship and care.
    I am so grateful to be your friend and share in this most wonderful
    story..

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  14. Tracy Leppold Avatar
    Tracy Leppold

    Chosen or not you two have a karmic bond. It’s all important, the funny ways we meet people and need each other. Old folks homes are horrible places. Even if you went in full of life it would drain it right out of you. Thanks for the cloth and the thoughts.
    What work did you do before you became a goat farmer? Before you were in your current life?

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  15. Mo Crow Avatar

    “it’s a beautiful life” I remember reading these words about a woman visiting her very old father in a nursing home, he was seemingly not there, just dribbling or fugueing out on most visits then one day for a moment he roused and spoke those words…
    Betty sings…
    she remembers all the words to Jeremiah was a bullfrog…
    her consciousness touches the material plane…
    to me this cloth is like a Japanese ikebana flower arrangement, it soars towards the spring moon

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  16. grace Avatar

    in this case, thought is almost preferable to feeling,
    maybe

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  17. grace Avatar

    i love being Home

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  18. grace Avatar

    yes. it just is.
    i’ve known her for a long time…maybe 15 years…i know
    all her family. adult children, brother, sister. the
    family.

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  19. grace Avatar

    THANK YOU
    VERY much for sending that link…i had a vague image of
    something of it in my mind from a time i read back Before
    My time on Spirit Cloth
    Yes. from Inside.

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  20. grace Avatar

    i had loaned the book…just emailed to see if i can get
    it back. if i remember correctly it is said to put the
    Buddhist Teachings in terms that any one of any persuasion
    might find usefull. and yes. bardo. and how dementia,
    alzheimer’s might enter into it all…
    with her, she was adamant that she would NOT continue
    living if she had diminished mental capacity. had membership in the Hemlock Society in Oregon, where some of her family lives, where she once lived. but as it seems to go…once you actually reach that level of diminished capacity, you are no longer able to make those decisions.

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  21. grace Avatar

    Any of us who has been in therapy probably has a similar
    collage, drawing, painting.
    Singing…Joy….i hope so too.

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  22. jude Avatar

    It goes so far back. I get lost in it…

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  23. grace Avatar

    for me i think the most important Thing is to tell what we
    see. to tell what we live. as plainly as we can. just
    as we see it. of course, our Filters will filter…that
    cannot be helped., but the old expression, tell it like
    it is.

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  24. grace Avatar

    first needs. but then, the 80 some years of living. Those
    years concern me.
    o Yvette…Love to you

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  25. grace Avatar

    i like that very much…”like a picture book might to a child”

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  26. grace Avatar

    yes. i think so too. it is said we magnetize those to us that will help us in our Work. i’m not sure it’s her or
    her son, but it probably is the constellation…similar
    to my brother and my own mother. so yes.
    this Old Folks Home is not in the slightest horrible. it’s
    really very great. it’s Kind and Bright with large windows everywhere, it smells GOOD, often from the kitchen where good food is prepared. the staff are competent and REAL
    people. the residents for the most part are at ease. i was very surprised to find these things to be true. Part of it is that it is in a small community. Lots of family coming and going. Excellent community support. Really…
    if i could no longer wipe my butt, i would be totally comfortable going there. Totally.
    What WORK did i do? For a long long time, 17 years, i was
    ward staff, Psych Tech, on the Acute Admitting Unit of the Adult Psychiatric Hospital at University of Michigan. that is the GROUND from which all else came. in my 20’s to late
    30’s. Then i did art therapy with spinal cord injured men.
    Created a book store, was part owner. was student of my
    Art mentor and then taught classes in creativity. taught
    kids drawing. in New Mex i ran the program for families of
    inmates at one of the Prisons for a while…mostly the kids. there, i self taught Conflict Resolution and passed it along to the kids. i did my own art….sold that…
    the Fiber figures. but then, the thing i came to love was
    HouseCleaning. the most money for the least amount of time. and sometimes that caught me up in Home Care. so
    some care of Terminal people through their families.
    OH! and for a while, i worked at a warehouse in Albuquerque on an assembly line, putting together packets of AS SEEN
    ON TV stuff. i was in the fishing lure line. I really
    loved that job.
    We need to remember that the goat farmer is temporary. they belong to the daughter.

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  27. grace Avatar

    LOVE that term…fugueing out….LOVE it…thank you for
    that…
    and i love it too that you compare it to Japanese ikebana
    …this allows me to see it in a different light …almost
    making me want to create a beautiful spring moon at the top
    BUT
    that’s NOT what it’s all about for me…not to make it
    pretty
    it’s Alzheimer’s Betty’s story. not mine. i tried to sell her on my story for years and no luck. So…it’s her
    story that i am in

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  28. grace Avatar

    yes and probably way farther than we would ever see. and
    in the Beginning, when i first found you i was so wishing
    i had something that was so so far back…a history
    a past
    that just went and went and went Back.
    and i grieved a little that i did not have that
    until
    i remembered my Diorama Thing and realized that i have
    my
    Looking.
    it goes back to when i was probably Three.

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  29. grace Avatar

    i’ve done a lot of things since in N.M. i forgot…but
    just now, thinking about Crow and Raven
    a job in the beginning here was to pack stuff that had been sold from Tapestry Gallery in Madrid, N.Mex. and also
    to RIDE with the owner of the gallery, Barbara Marigold who had horses….part of my job was to RIDE with her…down
    the dry riverbed of the Galesteo River…to ride like
    CRAZY … her horses were Arabs. and all i had to do was
    hang on. not be thrown. i did. That was a great job too.

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  30. beth Avatar

    All day I have thought about this post and this cloth… How some people slip easily into death and how others crawl through hell to get there. I’ve thought for a long time that it is a matter of learning the lessons we are supposed to learn before we get there. I hope I am learning/have learned/will learn. I want to live my days out on the top part of that cloth.

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  31. grace Avatar

    then i am sure you will. it’s really, i think, so simple.
    just awareness. just kindness. just looking and then
    going. it’s not complex at all, really.
    and that’s what was/is so hard with Alzheimer’s Betty.
    so simple. yet…she chose to see things as Hideous.
    it’s a choice.
    and we went round and round and round about it. now…
    she’s that face in the cloth and i am here….thinking.

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  32. Michelle in NYC Avatar

    I keep coming back here. I made some notes after first looking, then tuned into Ram Das on death, and re-read Kuber Ross. But, I’m still thinking, and FEELING. Death has been much on my mind lately. I still have nothing to say but that.

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  33. grace Avatar

    so in the meantime, we’ll think about Mating with Crows.

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  34. Michelle in NYC Avatar

    Ha! At my age, I’ll be thinking about flying with crows. That’s plemty good ’nuff for me. But, what a life you’ve had Grace…What a FINE, full, alive bit of living you’ve done, and are still doing.

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  35. dee Avatar

    looking, listening, seeing — what a powerful exercise in empathy.

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  36. handstories Avatar

    this post, grace,…and that red stitching. I’m remembering when grandma (blanche) was at the end of her days, cancer everywhere inside, but her heart still going. the dr. saying, “the problem is that her heart is so strong.” no, the problem is that cancer is killing her, i told him. she kept her eyes closed those last days. love you.

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  37. grace Avatar

    Blanche. cancer everywhere. Heart, so strong. What to do?for BlancheBeing???? we all die. we all die of Something.
    it’s a requirement.

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